Lead Organisation: North Wales Together
Following the launch event for the Learning Disability Transformation Programme in June 2019, an event with a specific focus on children and young people with learning disabilities was held on 19th October 2019. The event was co-produced by the Learning Disability Transformation Team, The Children Transformation Team, Flintshire Children’s Services, Denbigh and Conwy Children and Adolescent Learning Disability Service (CALDS) and Anglesey Children’s Disability Service. This helped to ensure that the day included ‘something for everyone’, families, young people, and professionals.
The event was aimed at families and the people and services who work with children and families to provide them with the opportunity to find out more about the Learning Disability Transformation Programme and participate in discussions, workshops and provide feedback and recommendations. The event involved both the Children’s Transformation Project and the ALN Transformation Project, provided a further opportunity for participants to find out more about these programmes and to explore areas of synergy.
120 people attended the event, with a good mix of children and young people with learning disabilities, families, and education, health, and social care professionals. The attendants actively participated in the event and their presence elevated the discussions on the day and highlighted the fundamental importance of tackling the issues and barriers that prevent children and young people with learning disabilities from achieving their full potential in North Wales. Below are some quotes from the day:
“My needs, wants, likes, dislikes and preferences are understood!”
“Being helped to make my own decisions!”
Since the event the Programme Team agreed delivery priorities with all its partners. The feedback from the event was used to inform these priorities and provide an evidence base. The Learning Disability Transformation Team has also been working closely together with the Heads of Children’s Services, the ALN Transformation and Children and Young People’s Transformation Teams to address and find solutions for issues that are cross-cutting in nature including:
- Pre and post diagnostic support and education for families in the community.
- Improving the transition from children to adult services in general, for those with PMLD, and considering the pending ALN Tribunal Act.
- Better engagement in the transformation agenda from education.